My name is Lisa Douglas and I am the mother, and sole provider of care, for an amazingly smart, witty, charismatic, 13-year-old daughter, Alexandra. Alexandra was severely debilitated by OCD for 6 of these past 9 years since PANDAS ‘attacked’ her when she was only 4. The apex of Alexandra’s journey to simply be like ‘normal’ people is marked by her recent, astonishing ascent from the subterranean bowels of OCD Hell she has inhabited for as long as she can remember, to becoming freed to, once again, walk along and among the “land of the living.”
Over these past nine years and all the realizations I’ve made about the mental health system, its profession and providers, society’s stigmas, discrimination, accusations, insurance debacles and all else involved, I’ve been making belief, someone, someday will help my progressively declining child whose Y-BOCS consistently remained between 34 and 40 for the past 6 whole years!
Until this past April, she and I have been on an endless quest for proper treatment which would help to reduce and, ultimately, release her from the incomprehensibly horrific, all-consuming, self-harming, isolated purgatory from which she was ever-increasingly, perpetually trapped by her obsessions and rituals. Earlier this year, our seemingly last hope for help an extended stay at Rogers Memorial but after months of fighting with her 2 insurance companies over denying coverage for admittance, I was at my wit’s end, again! Having immersed myself into the global OCD community for many years seeking help, advice, guidance, etc., I came across a post seeking beta study participants using an app for ERP. Immediately, I applied for my daughter. The director/doctor was very hesitant as Alex’s OCD was so extreme. However, with a lot of persuasion, a remarkably wise and kind doctor and I took an enormous ‘leap of faith. From that day forward, she and I have forged ahead, determined to help Alexandra help herself.
Alexandra has been diligently working with the Live OCD Free app, having Skype sessions with Dr. Mulcahy, and with the help of my unwavering support, guidance and fortitude, is doing her exposure’s. Additionally, Dr. Mulcahy and I are in frequent contact, I take part during Alexandra’s Skype session’s when needed and I contend with and the myriad of other issues and conundrum’s involved while helping a person battle OCD to regain a life worth living.
During this short time, with much hard work and determination, she has achieved remarkable progress against her, previously omnipresent, OCD symptoms! Her OCD had forced her into seclusion, isolation, and painful 4+ hour ritualistic decontamination showers and had even left her unable to touch or breathe the air of those she loves. Remarkably, Alexandra can now walk anywhere and touch almost everything freely. She can hug and spend time with loved-ones and friends without decontamination. Ali’s showers are now only 25-minutes and do not involve any painful or harmful rituals. She continues to work to conquer her remaining OCD issues and anticipates, in time, a full recovery from the OCD which has plagued her since the age of four.
Alexandra and I want nothing more than to join in and contribute what we’ve learned to the ongoing global revolution against this insidious, debilitating monster we call OCD! We need to help others understand, OCD is not invincible, can be fought and, ultimately, defeated. By using an arsenal of OCD Battle Gear including proper ERP therapy with execution, the Live OCD Fee app, a highly trained ERP expert*and experienced, non-clinical, support; OCD sufferers can get better! By ‘making belief” during these long, dark, 9 years, I somehow maintained the strength to forge ahead for Alexandra. It is for this belief and the endurance it provided, I am so thankful.
*”a highly trained ERP expert is always good, if available. One who will use the invaluable LOCDF data received weekly, sent via email, from the OCD sufferer is best. By combining the therapists expertise with a day by day account of the sufferers progress with the LOCDF app, infinitely enhances ongoing ERP hierarchy development and strategic exposure directives. These joined forces of the app and therapist result in faster, less ‘painful,’ recovery times.