Back From The Conference

Alexandra, Michael and I had such an amazing experience attending the convention in Chicago! I learned so much, my head is still spinning, thinking, analyzing, empathizing and planning for next years Annual IOCDF Convention in Atlanta!
After corresponding for so long over the internet, Janet and I were FINALLY able to meet during the convention. I was honored to be in the company of such a highly respected and dedicated OCD advocate and fellow adoring mother to an OCD sufferer. She, like I, are committed to raising OCD awareness the world over, one step at a time!

ocdtalk

Well, I arrived home after midnight last night, totally exhausted, my mind full of so much new information. My first International OCD Conference was a resounding success, and I hope to share some of what I’ve learned in some upcoming posts. The sessions I chose to attend ranged from various introductory talks regarding different aspects of OCD to advanced ones geared toward therapists and researchers. I took something valuable away from each seminar.

It was outside of these talks, however, that I learned the most. Connecting with sufferers and their loved ones, and hearing individual stories as opposed to theories, is what impacted me most. Stories of torment, heartache and loss, as well as those filled with hope, and even humor, touched me deeply. Though there were people there from all walks of life, we shared a common bond; the fight against obsessive-compulsive disorder.

As I said before, a unique…

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About LISA DOUGLAS

Foremost, I am an OCD awareness, treatment and long-term recovery: advocate, spokesperson, consultant, supporter, and educator. I am the mother and sole provider of care for an amazingly smart, witty, charismatic, 13 year old daughter, Alexandra, who was severely debilitated by OCD. The apex of Alexandra’s journey to simply be like ‘normal’ people is marked by her recent, astonishing ascent from the subterranean bowels of OCD Hell she has inhabited for as long as she can remember, to becoming freed to, once again, walk alongside and among the “land of the living.” Over these past nine years and all the realizations I’ve made regarding the mental health system, its profession and providers, society’s stigmas, discrimination, accusations, insurance debacles and all else involved, I’ve been making belief, someone, someday will help my progressively declining child who’s Y-BOCS consistently remained between 34 and 40 for the past 6 whole years! Until this past April, she and I have been on an endless quest for proper treatment which would help to alleviate and, ultimately, release her from the incomprehensibly horrific, all-consuming, self-harming, isolated purgatory from which she was ever-increasingly, perpetually trapped by her obsessions and rituals. Earlier this year, our seemingly last hope for help was to be an extended stay at Rogers Memorial but after months of fighting with her 2 insurance companies over denying coverage for admittance, I was at my wits end, again! Having immersed myself into the global OCD community for many years seeking help, advice, guidance, etc., I came across a post seeking beta study participants using an app for ERP. Immediately, I applied for my daughter. The director/doctor was very hesitant as Alex’s OCD was so extreme. However, with a lot of persuasion, a remarkably wise and kind doctor, as well as, an enormous ‘leap of faith,’ we began using the app from LiveOCDFree. She has been diligently working with the Live OCD Free app for the past 3 months. During this short time, with much hard work and determination, she has achieved remarkable progress against her, previously omnipresent, OCD symptoms! Her OCD had forced her into seclusion, isolation, and painful 4+ hour ritualistic decontamination showers and had even left her unable to touch or breathe the air of those she loves. Remarkably, Alexandra can now walk anywhere and touch almost everything freely. She can hug and spend time with loved-ones and friends without decontaminating. Ali’s showers are now only 25-minutes and do not involve any painful rituals. She continues to work to conquer her remaining OCD issues and anticipates, in time, a full recovery from the OCD which has plagued her since the age of four. Alexandra, and I, want nothing more than to lead a revolution against this insidious, debilitating monster we call OCD! To help others see how much hope there is with proper treatment, she and I are documenting her OCD recovery process and history through Facebook.com/ LiveOCDFree, Twitter: LiveOCDFree, YouTube.com/LiveOCDFree, OCDKids.wordpress.com and LiveOCDFree.com. Please, join and /or follow her journey so you can be aware of OCD, too. View all posts by LISA DOUGLAS

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